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Genre/Form: | Biographies Biography |
---|---|
Named Person: | Schuyler Noelle Hudson; Schuyler Noelle Hudson |
Material Type: | Biography, Internet resource |
Document Type: | Book, Internet Resource |
All Authors / Contributors: |
Robert Rummel-Hudson |
ISBN: | 9780312372422 0312372426 |
OCLC Number: | 156832409 |
Description: | viii, 273 pages ; 22 cm |
Contents: | Part 1 A Monster Hiding -- Part 2 A Monster Revealed -- Part 3 A Monster Challenged. Part One: A Monster Hiding -- 1. Kalamazoo -- 2. When I Grow Up -- 3. A Joyful Kind of Chaos -- 4. Disquiet -- 5. The Saddest Place in the World -- 6. The Holland Thing -- 7. "Nothing Makes Us So Lonely As Our Secrets" -- 8. The Answer that was False, and the Answer that was True -- Part Two: A Monster Revealed -- 9. Monster -- 10. Hard Times Give Me Your Open Arms -- 11. Schuylerese for Beginners -- 12. To the Mountaintop -- 13. Bug Fairy -- 14. Note to Schuyler, Christmas 2004 -- 15. Fighting Monsters with Rubber Swords -- 16. The Island -- Part Three: A Monster Challenged -- 17. Vox -- 18. The Village -- 19. A Big Box of Words -- 20. Speechless -- 21. Box Class -- 22. Howl -- Epilogue. |
Responsibility: | Robert Rummel-Hudson. |
More information: |
Abstract:
Schuyler’s Monster is an honest, funny, and heart-wrenching story of a family, and particularly a little girl, who won't give up when faced with a monster that steals her voice but can’t crush her spirit. When Schuyler was 18 months old, a question about her lack of speech by her pediatrician set in motion a journey that continues today. When she was diagnosed with Bilateral perisylvian polymicrogyria (an extremely rare neurological disorder caused by a malformation of the brain.), her parents were given a name for the monster that had been stalking them from doctor visit to doctor visit and throughout the search for the correct answer to Schuyler's mystery. Once they knew why she couldn’t speak, they needed to determine how to help her learn. They didn’t know that Schuyler was going to teach them a thing or two about fearlessness, tenacity, and joy. Schuyler’s Monster is more than the memoir of a parent dealing with a child’s disability. It is the story of the relationship between a unique and ethereal little girl floating through the world without words, and her earthbound father who struggles with whether or not he is the right dad for the job. It is the story of a family seeking answers to a child’s dilemma, but it is also a chronicle of their unique relationships, formed without traditional language against the expectations of a doubting world. It is a story that has equal measure of laughter and tears. Ultimately, it is the tale of a little girl who silently teaches a man filled with self-doubt how to be the father she needs. Schuyler can now communicate through assistive technology, and continues to be the source of her father's inspiration, literary and otherwise.
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Related Subjects:(11)
- Hudson, Schuyler Noelle -- Mental health.
- Developmentally disabled children -- United States -- Biography.
- Brain -- Abnormalities -- Patients -- United States -- Biography.
- Language disorders in children -- Patients -- United States -- Biography.
- Fathers -- United States -- Biography.
- Hudson, Schuyler Noelle.
- Developmentally disabled children.
- Fathers.
- Language disorders in children -- Patients.
- Mental health.
- United States.
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by leadmomma updated 2008-08-28